|
Clinical outcomes used as indicators to assess the performance of medical treatment and mental health |
|
| Condition or Service |
Outcome measure |
|
|
|
| Alstrom syndrome |
Appropriate measure not clear, there are biochemical markers of quality of care. |
| Chorioncarcinoma |
Deaths |
| Epidermoloysis bullosa |
Appropriate measure not clear, there are biochemical markers of quality of care. |
| Intestinal failure |
Annual mortality |
| Lysosomal storage disorders |
Quality of life scales currently in development |
| Mental health service for deaf adolescents |
Global function score |
| Obsessive compulsive disorder |
Yale-Brown Obsessive Compulsive Score |
| Paediatric liver disease |
Heterogeneous category: five marker conditions are under consideration; Hepatoblastoma, Biliary atresia, Tyrosinaemia, Autoimmune sclerosing cholangitis, Bile acid disease. For all of these survival is the outcome indicator. |
| Paediatric pulmonary hypertension |
Survival |
| Persistent Hyperinsulinemic hypoglycaemia of infancy (PHHI) |
Survival and disability |
| Secure forensic mental health service: for young people |
Health of the Nation Outcome Scales for Children and Adolescents (HONOSCA) and; Health of the Nation Outcome Scales (HONOS) Secure plus global function |
Kenny et al. Orphanet Journal of Rare Diseases 2008 3:23 doi:10.1186/1750-1172-3-23 |
|